I am in my sophomore year of High School and it has been probably the hardest year fatigue and health wise in a long time. I started in the fall of 2015 with four classes, and then have had to drop it back to one, and now I am at two. I am so frustrated. I just want to be a healthy, normal kid. A normal teenager who can do activities, hang out with friends, go to school and not feel awful all the time. This year has just been a hard one.

The doctors are trying different things to help me feel better, and slowly, I think I am getting a bit better. As much as I hate having a central line, the IV fluids help. The doctors have added back things my body needs into my IV fluids that I get 4 days a week, and that has helped. One step forward, some days, and then 4 steps back.

I have a lot of goals. I want to do cheerleading again, I want to do barrel racing horseback riding, I want to go to college to be possibly a nurse anestheologist, or speech therapist. As I have been having a hard time with the traditional school setting, we have decided to change school settings and I am starting at a Charter School if all goes well on April 4th. I am very excited as it is much smaller both in amount of students as well as in physical space. I hope that this will help to make me less fatigued, and be better able to work with my academic needs. I am very excited.

My plan right now is to build up my endurance, as my body gets healthier. I want to be able to work at one of the local Therapeutic Horse Farms and work with the kids that go there who have special needs. I love horses, animals, hanging out with friends, country music, babysitting, and of course cheerleading.

I ‘d love to be on the go all of the time but I have to pace myself. If I don’t then I end up to fatigued to do anything. We live in a great neighborhood where I can play soccer, basketball, four square, go walk down town. Hard to not feel good when you just want to be on the go.

This summer I look forward to our family reunion and family visiting from England. I hope to get to go to the Cape to spend time with my Dad, grand parents, friends and family down there. I would love to go to New Jersey and New York to be with my family there as well.

I really have the hardest time with Mitochondrial disease, as I am the most affected. I want a cure so that I can be normal like my friends, have children of my own some day, and not be so restricted by my disease. I wish my whole family were healthy.

Past Events

As always, we are greatly grateful to everyone's participation and continued support. Click the links below to view our past events.
Thank you.

Contact Us

For updates more information, or donations please do not hesitate to contact us.

Name: Christopher White
Address: 47 Shrewsbury Ave
    Highlands, NJ 07732
Telephone: +732-547-3509